Writing to Recipients

For some it may come easy within the first couple of days, for some it may take years, and for some they may never feel ready. It is completely up to you whether to write or not write and it’s important to make that decision at your own pace.

Contact Infinite Legacy’s Aftercare Team: Sending a Letter to Your Loved One’s Recipient

Infinite Legacy’s Aftercare Team facilitates all correspondence between donor families and transplant recipients and we are here to support you in the process. We can answer questions, discuss your feelings about taking this step, and help you write your card or letter. If you have questions or concerns, please contact us at 443-833-1147 or aftercare@infinitelegacy.org. 

Tips for Donor Families on Writing to Recipients

Donor family members often choose to write to recipients to tell them a little about who their loved one was, including their hobbies, occupation, etc. We’ve heard recipients welcome and appreciate these details. 

Until you get a feel for your loved one’s transplant recipients and for how you feel about corresponding with them, we recommend you do not disclose any identifying or direct contact information. While Infinite Legacy does not restrict sharing, identifying or direct contact information, we do want to make sure you have considered all of the potential outcomes of making such a disclosure.

Keeping Information Confidential: Your Right to Privacy

In order to correctly match your letter to your loved one’s recipient, we need your contact information to be completed in its entirety. This information is confidential and is only used by the aftercare coordinators to facilitate your correspondence.

Due to the increasing use of social media sites and other online search capabilities, the range of information making you “identifiable” has greatly increased. If you disclose the same information that you have written on a Facebook page, blog or online obituary, your recipient may be able to locate you through the internet. 

What to Expect After Your Letter is Sent to Your Loved One’s Recipient

After your initial letter is written and forwarded to the recipient, you may feel somewhat anxious about whether or not you will hear back. Although many families do hear back from their loved one’s recipient(s), there is no guarantee you will receive a response. Should your loved one’s recipient choose not to write to you at this time, please do not take this inaction personally. In addition to the task of physically recovering from their transplant, many recipients are dealing with a complex range of emotions.

You may wish to include your identifying information in your card or keep your identity anonymous. The form below is intended for our Aftercare Team use only and will not be forwarded to the recipients.

Your message will be sent to our Aftercare Team for review. From there, we will forward the message to your loved one’s recipient(s).

Writing to Tissue Recipients: What You Need to Know

A note about writing to tissue recipients: Not all of our tissue banking partners have a correspondence program in place at this time. If your loved one was a tissue donor, please contact us to see if correspondence is a possibility for you and your family.